Medical database and specialty registers:
epidemiology and public health instruments
The collection of medical data targeted on a disease are powerful tools in the service of public health. Their implementation requires compliance with a methodology guaranteeing data consistency and security. The technical issues related to the feeding of these bases by multiple sources and centers must be anticipated to ensure this consistency.
The advantages of our databases
Relevance of our technical base
Epiconcept has extensive experience in medical databases, including those for rare diseases. We leverage the Voozanoo platform using a standardized methodology that enables the implementation of a user-friendly and secure data collection system. Epiconcept designs the appropriate data structure in collaboration with its clients. Clients can then independently manage the form creation, adding, and archiving of new variables, if they so choose.
Adapted and scalable architecture
Voozanoo allows you to set up any database structure, from the simplest to the most complex, making it possible to archive or add new data at any time.
Data extraction
The data is freely extractable by authorized users.
Voozanoo offers features for setting up dashboards or statistical analyses (R module). Our teams can support you with specific expertise in biostatistics.
Accommodation / HDS
The entire hosting service provided by Epiconcept on the Voozanoo platform is covered by ISO 27001 HDS certification . This certification guarantees compliance with the legal framework regarding the security and confidentiality of health data.
Segmentation and management of access rights
Data access rights are precisely defined and may change over time and the data collected.
Ergonomics
When data is collected manually, ergonomics becomes a tool to make data entry more reliable.
Voozanoo offers functionalities to set up dashboards or analyzes
statistics (R module).
Examples of projects Medical database and specialty registers
AFM
Sponsor: AFM Telethon
Dates: since 2014
The AFM is setting up rare disease databases under Voozanoo , federated within a database portal.
UHF Imminent
Sponsor: Lille University Hospital
Dates: Since 2018
Imminent federative hospital-university project (FHU) (inflammatory diseases and targeted therapies), financed by the CHU and the University of Lille.
Its purpose is to monitor all patients with inflammatory diseases. 7 different pathologies are now included in a multi-database portal: Angioedema, Psoriatic arthritis, Multiple sclerosis, Atopic dermatitis, Lupus, Systemic scleroderma, Severe asthma
RAA
Sponsor: French Polynesia Health Department
Dates: 2021 – ongoing
Implementation of the information system for screening and registering acute rheumatic fever in French Polynesia
Institute of Myology
Sponsor: Institute of Myology
Dates: since 2012
File exchange platform in the context of studies and a study platform
