Social network data: an asset for public health research

Patients often discuss the daily life of their disease publicly on social networks. Therefore, those are potential sources of data or inclusion for studies and cohorts - provided the respect of ethics and of the Information System Security Policy's security framework.

 

Epiconcept projects: social networks and open data diabetes

Epiconcept works with Inserm to identify tweets from people with Type-1 or Type-2diabetes. Its solution identifies patient tweets according to a database of Hashtags (#) and keywords related to the disease ; it also enables togeolocalize them. Then, it organizes them in an automatic database organized into "stress clusters". As a result, researchers can analyze the feelings and causes of stress related to the disease to define patient according to their type of diabetes distress.